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Moonrise: One Family, Genetic Identity, and Muscular Dystrophy by Penny Wolfson

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所在地:Sparks, Nevada, 美國
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Book Title
Moonrise: One Family, Genetic Identity, and Muscular Dystrophy
Publication Date
2003-03-26
Pages
256
ISBN
9780312289089
Publication Name
Moonrise : a Family's Journey Through Muscular Dystrophy
Item Length
8.6in
Publisher
ST. Martin's Press
Publication Year
2003
Type
Textbook
Format
Hardcover
Language
English
Item Height
1.1in
Author
Penny Wolfson
Features
Revised
Item Width
5.7in
Item Weight
14.6 Oz
Number of Pages
256 Pages

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Product Information

Moonriseis Penny Wolfson's first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of "wrongness," takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life. As she traces her son's development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.

Product Identifiers

Publisher
ST. Martin's Press
ISBN-10
0312289081
ISBN-13
9780312289089
eBay Product ID (ePID)
2216744

Product Key Features

Author
Penny Wolfson
Publication Name
Moonrise : a Family's Journey Through Muscular Dystrophy
Format
Hardcover
Language
English
Features
Revised
Publication Year
2003
Type
Textbook
Number of Pages
256 Pages

Dimensions

Item Length
8.6in
Item Height
1.1in
Item Width
5.7in
Item Weight
14.6 Oz

Additional Product Features

Lc Classification Number
Rj482.D78w656 2003
Edition Description
Revised Edition
Copyright Date
2003
Topic
Neurology, People with Disabilities, Children with Special Needs
Lccn
2002-035813
Dewey Decimal
362.1/96748/0092 B
Intended Audience
Trade
Dewey Edition
21
Illustrated
Yes
Genre
Biography & Autobiography, Family & Relationships, Medical

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